Getting to Know SL
SL had an MRI scan at Queens Hospital, where a fistula in her neck was diagnosed. She underwent surgery for repair, but a rupture during the angiogram caused a blood vessel to bleed into her spine, leading to a spinal cord injury. After spending time in the ITU and undergoing rehabilitation at Stanmore Hospital for eight months, SL faced life with tetraplegia.
SL has a C1 Spinal Cord Injury and tetraplegia. She has no sensation or control of her body below this injury site, making her reliant on carers for all activities of daily living (ADLs). SL experiences phantom sensations and becomes sensitive to irritation at the site of her catheter.
Home Visit and Care Integration
SL lives at home with her husband, daughter, son, and their cat Keanu. She enjoys watching films, Korean soaps, and daytime television with her live-in carer, who also helps her engage in cooking by following her step-by-step instructions to prepare meals. This involvement in daily activities helps SL maintain her role as the lady of the house.
Building Trust
Since her injury, SL experienced increased anxiety and chose to spend most of her time indoors. Innovate’s Clinical Lead made it their mission to help SL overcome her anxiety. Through long conversations with SL and her family, a plan was developed for SL to take small steps towards feeling safe and empowered to venture outside.
Challenges and Solutions
One major anxiety trigger for SL was her home environment. The only exit from the house had a high threshold, causing her to fear shaking her head and having an accident. Innovate facilitated the installation of appropriate ramps to make the exit safe and accessible.
Another challenge was encouraging SL to use her Bi-Pap mask overnight. Although medical advice allowed for one night without it, the team worked gently to encourage its use for her well-being.
The sporadic nature of the weekend and holiday care package presented staffing challenges, but Innovate managed to keep the team engaged and motivated.
SL’s Your Best Life (YBL) Journey
With support, SL ventured out to her garden in May, enjoying the sunshine and inspecting her vegetable garden. This milestone marked her first day out in four years. SL expressed her gratitude, saying,
A significant milestone for SL was a day trip to Southend, where she enjoyed the amusements with her family. This achievement was a testament to her determination and the support from Innovate. SL is now planning to visit her parents and surprise her dad on his birthday.
Looking Ahead
Innovate Care Group continues to support SL by providing the necessary resources and emotional support to help her achieve her goals. With regular visits and continuous encouragement, SL plans to take more trips and engage in activities that bring her joy and fulfilment. The team is dedicated to ensuring SL lives her best life, filled with new experiences and cherished memories.
